Latin America: Dominican Republic
The Dominican Republic (DR) is a small country in the Caribbean that shares half the island of Hispaniola with Haiti. The DR's population of 8.9 million is a blend of Spanish, African, Caucasian and native Taino. There are an estimated 500 people living with hemophilia in the Dominican Republic. However, only 255 of those affected have been identified and registered. Local hemophilia centers care for those who have been identified. Sadly, factor concentrates, the mainstay of treatment, are expensive and remain beyond the reach of most Dominicans who live with hemophilia. The government does not purchase factor.
Healthcare in the DR largely remains a private responsibility. The majority of hemophilia patients in the DR are poor and depend on receiving either free factor or substituting it with treatment using plasma. FAHEM was formed in 1996 to serve the needs of those affected by hemophilia.